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Lylas Law

  • Jul 4
  • 1 min read

📣 Lochlan’s Legacy Stands with Lyla’s Family – We Urge Action for Lyla’s Law 💙


We are heartbroken by the tragic loss of little Lyla Story, a bright and beautiful 2-year-old who passed away on May 3rd, 2025 — just 16 hours after being seen by a GP who missed the signs of undiagnosed Type 1 Diabetes.


Her symptoms were clear: excessive thirst, vomiting, lethargy, and weight loss. A simple urine or blood test could have saved her life. But that test wasn’t done — and her family was left shattered.


Lyla’s story is not an isolated one. Dozens of children are missed and misdiagnosed every year — and too many pay with their lives. That’s why Lochlan’s Legacy is fully backing Lyla’s Law, a vital campaign calling for mandatory routine testing for Type 1 Diabetes in children at the point of care.


This law would:

✅ Require routine urine/blood testing during GP consultations where symptoms are present

✅ Improve adherence to NICE guidelines

✅ Protect young, non-verbal children who can’t advocate for themselves

✅ Educate healthcare professionals and families about the signs of Type 1 Diabetes


Lyla’s life mattered. Her legacy must lead to change.


👉 Please, join us in supporting this campaign and sign the petition:


Together, we can help make sure no other family has to suffer this kind of preventable loss. Let’s make Lyla’s Law a reality. 💙



 
 
 

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Lochlan's Legacy-SCIO  

Established October 2020

Registered Scottish Charity No. SC050543

Head Office, Mossback Farm, Cairn Road,

Cumnock, Ayrshire, Scotland KA18 1SL 

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Phone: 00 44 (0) 776 955 0024 |

Email: info@lochlanslegacy.co.uk

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